Fighting Lissencephally: Harmony’s Story

 

 

In 2009 my third child, Harmony, was born with a rare genetic condition called Lissencephally. This condition is also known as smooth brain. It is called this because the last layer of her brain did not fully develop in utero. This severe brain malformation causes what is known as intractable epilepsy. This means that her seizures are uncontrolled by pharmaceuticals. Five failed Anti Epileptic Drugs later,  I began to look for alternate options which led me to hemp oil.

In the first several months of delving into the hemp industry I learned a lot.  Most available hemp products where not anything I would give to my child. Most companies, I found, market wares that were  mislabeled and not fit for human consumption. This was frustrating and frankly maddening. I knew something needed to be done.  I was going to get a consistent tested reputable product to my child. It was then that I decided I would enter into this industry. Thus, with the help of other parents of special children like my own, Palmetto Synergistic Research (AKA Palmetto Harmony) was born.

We pride ourselves in providing a safe legal hemp product to anyone who needs it. My daughter has been able to have a quality of life that was removed from her now. Quality of life that was taken away by the onslaught of seizures and pharmaceutical medications. Today, Harmony has come a long way. From hundreds of seizures a day and an array of harmful pharmaceuticals to a 90% reduction in seizures and an 80% reduction in pharmaceuticals. Palmetto Harmony has not only saved my child’s life but has given our family back hope. Hope we had run out of with modern medicine.

Below I have attached Harmony’s daily dose of pharmaceuticals: Before and after Palmetto Harmony. Her daily dose is laid out for each drug. Her current regiment of drugs she takes now along with 1 ML a day of Palmetto Harmony. It’s about quality of life and now my child has hers’ back thanks to our products.

Pharmaceuticals Harmony Took Before With NO Seizure Control

before

Pharmaceuticals Harmony Takes Now With 1 ML of Palmetto Harmony 90% Reduction of Seizures

after

2 thoughts on “Fighting Lissencephally: Harmony’s Story

  1. Marie says:

    Your story brings tears to my eyes, my oldest son was born with lissencephaly, he was the sweetest boy. I wish I would have known about this company. He was on seizure meds from about 5 months to 41/2 years old. Those seizures were aweful and made his quality of life not so good. He was the sweetest happy boy, and an angel in our home. I have had 4 healthy children since then and had our sixth little angel on July 1st 2016. She was diagnosed with polymicrogyri/lissencephaly I am hopeful that her quality of life can be better with the knowledge of CBD oil. She had her first seizure when she was 5 months old and neurologist wanted to start her on phenobarbital, but since we have been down that road we are trying to avaoid meds as much as possible. We came across Charlotte’s Web and have been using that, although she still has the infantile spasms while using it. So my question is, how does yours compare to the Charlotte’s Web? Have you had people switch of to yours from that and notice a better outcome with yours? I would love to talk to you more.

  2. Pingback: Lissencephaly - CBD Reviews

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